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Moebius Syndrome Foundation
Bringing together information from and links to medical and lay support for those affected by Moebius syndrome, a genetic flaw that affects cranial nerves and often accompanied by other anatomical birth defects (e.g., partial or deformed limbs, inability to eat any but soft foods), this resource is international in scope. Links vary in their sophistication, and include support and advice for those living with a condition sometimes called "Life without a smile" (because the nerves and muscles necessary to create that facial expression are missing). Particularly useful is the link to Tom Voorheis' page of practical support moebius1.org .
http://www.moebiussyndrome.com/
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