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Orphanet
Compilation of material about rare diseases and the "so-called 'orphan drugs' [which] are intended to treat diseases so rare that sponsors are reluctant to develop them under usual marketing conditions." Browse resources on rare diseases and orphan drugs (such as encyclopedias, newsletters, and clinical trials) for patients, professionals, industry, and organizations. Also available in French, German, Italian, and Spanish. From a consortium of European partners.
http://www.orpha.net/consor/cgi-bin/index.php?lng=EN
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