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The Myelodysplastic Syndromes Foundation
"MDS, or myelodysplastic syndromes, is a collection of disorders in which the bone marrow does not produce enough blood cells. ... MDS is not considered a cancer. However, some forms of MDS can progress to acute myeloid leukemia (AML), a type of cancer." The site for this "international organization devoted to the prevention, treatment, and study of the myelodysplastic syndromes" features a FAQ, information for patients, lists of international trials, and links to related sites.
http://www.mds-foundation.org
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