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Caregiver Care
 Websites presented in alphabetical order 4 Girls Health 
 This site for adolescent girls offers basic information about puberty, fitness, mental health, nutrition, healthy relationships, safety, and substance abuse prevention. Includes sections for parents and caregivers and for teens with chronic illnesses or disabilities. From the Office on Women's Health, U.S. Department of Health and Human Services. http://www.girlshealth.gov/ Topics: Drugs, Health, Senior Health, Women, Women's Health Last updated Jul 9, 2009 A&A Publishers: Hard Choices for Loving People
This site features the full text of the book "Hard Choices for Loving People." Written by a nursing home and hospice chaplain, the book discusses the difficult decisions patients and caregivers face when dealing with terminal illness and the end of life. Covers cardiopulmonary resuscitation (CPR), dialysis, feeding, use of respirators, pain relief, and hospice care, with the intent of helping people make informed choices. Also includes excerpts from a related book. http://www.hardchoices.com/ Topics: Diseases & Conditions, Ethics, Long-term Care, Medical Treatments & Devices, Senior Health Last updated Jun 15, 2007 Administration on Aging (AoA)
Information about AoA and its programs. Includes resources for elders, families, and caregivers (Alzheimer's resources, disaster assistance, elders' rights, housing, nutrition, services); practitioners (civil rights, government poverty guidelines, statistics, transportation); and links to grant programs. AoA is part of the U.S. Department of Health and Human Services. http://www.aoa.gov/ Topics: Mental Conditions, Senior Health Last updated Sep 4, 2009 Alzheimer's Association: Caring for Diverse Populations
"A resource for people with dementia, family and friends, and health and social service professionals." Covers African-American, Chinese, Hispanic/Latino, and Korean communities. The site includes resources in other languages (including Chinese, Korean, and Spanish), links to websites, and information about providing culturally sensitive care. http://www.alz.org/professionals_and_researchers_caring_for_diverse_populations.asp Topics: Long-term Care, Mental Conditions, Senior Health Last updated Mar 1, 2007 Alzheimer's: Planning for the Holidays
Provides caregivers of people with Alzheimer's disease with ideas for coping during the holiday season, a time that "may bring mixed feelings and questions about your loved one's needs, his or her capacity to be involved in holiday festivities, and your expectations for yourself." Topics include planning celebrations, managing expectations, home preparation, and involving loved ones in the holiday plans. From the Mayo Clinic. http://www.mayoclinic.com/invoke.cfm?objectid=CF51EDFA-83FE-4292-A2D90C07588B6F90&locID= Topics: Holidays & Observances, Long-term Care, Mental Conditions, Senior Health Last updated Nov 2, 2005 As Summer Begins, CPSC Warns About Drowning Dangers
Recommendations and tips from the U.S. Consumer Product Safety Commission (CPSC) to parents and caregivers about "several key steps that will help protect children from drowning hazards in pools and spas." Includes a video and links to fact sheets on entrapment hazards in pools, safety barrier guidelines for pools, and related topics. http://www.cpsc.gov/cpscpub/prerel/prhtml05/05178.html Topics: Consumer Research & Advocacy, Senior Health, Sports, Sports, Recreation, & Entertainment Last updated Jun 1, 2005 Cancerandcareers.org: A Resource for Working Women With Cancer
Designed for working women with any type of cancer, their employers, coworkers, and caregivers. Provides coping strategies and tips; brief facts about cancer; and stories from patients, friends, and employers to inspire women to continue to work through treatment. Also available in Spanish. Searchable. http://www.cancerandcareers.org/ Topics: Cancer, Jobs & Work, Long-term Care, Senior Health, Women Last updated Feb 24, 2007 CareGuide
This site offers elder care resources, including medical, legal, and safety information, and guidance for choosing types of care and service providers. Topics include memory and aging, home care, living alternatives (such as hospice and respite care), and wills and estate planning. Searchable. From a care management company. Note: Site also includes information about the company's fee-based services and a directory of providers in the company's network. http://www.eldercare.com/ Topics: Long-term Care, Medical Treatments & Devices, Senior Health, Seniors Last updated Apr 13, 2005 Curetoday.com: Cancer Updates, Research and Education
Online version of the "magazine developed for individuals coping with cancer and blood disorders. [It] provides scientific information in an easy–to–understand format." News briefs and feature articles cover research, prevention and detection, treatment, recovery, advocacy, and caregiving. Also includes essays from magazine readers. Searchable by disease or condition. http://www.curetoday.com/ Topics: Cancer, Magazines, Senior Health Last updated Aug 10, 2009 Department of Health and Human Services and SAMHSA's National Clearinghouse for Alcohol & Drug Information: Publications
Provides online pamphlets, posters, video files, educational resources, and statistical information for teachers, caregivers, teens, healthcare providers, community leaders, journalists, and researchers. From the Substance Abuse and Mental Health Services Administration (SAMHSA), U.S. Department of Health and Human Services. https://ncadistore.samhsa.gov Topics: Drugs, Drugs & Medications by Type, Federal (U.S.) Government, Mental Conditions, Senior Health Last updated Nov 7, 2006 End-of-Life Choices: Feeding Tubes and Ventilators
This fact sheet discusses two common decisions facing families of chronically ill people: using feeding tubes when the person cannot swallow, and ventilators when the person cannot breathe on his or her own. Topics include artificial hydration and nutrition, and pneumonia and ventilators. Provides a link to a fact sheet on "Holding On and Letting Go," and related resources. From the Family Caregiver Alliance, an education and advocacy organization. http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=399 Topics: Diseases & Conditions, Long-term Care, Senior Health Last updated Mar 22, 2005 Family Caregiver Alliance
A source for "caregivers of adults with Alzheimer's disease, stroke, traumatic brain injury, Parkinson's disease, ALS, and related brain disorders." The Resource Center includes care and services, work and eldercare, and related online services. There are factsheets on a variety of diseases, diagnosis, and research, some in Chinese or Spanish. There are also statistics, public policy issues, reading lists, and links to related sites. http://www.caregiver.org/ Topics: Diseases & Conditions, Long-term Care, Mental Conditions, Senior Health Last updated Dec 16, 2002 How to Keep Safe in Chat Rooms
This site provides information on the dangers of using unmoderated Internet chat rooms, and aims to "stimulate parents and caregivers to take greater interest in what their children are doing on the net and help them ensure that we all use the net safely." Includes an online chat simulation game, parents' guide, links to good chat room examples, and recommendations for keeping safe in online chat rooms. From Childnet International. http://www.chatdanger.com Topics: Families, Internet, Internet Guides & Search Tools, People, People, Senior Health Last updated Mar 18, 2003 The Imagination Factory
Devoted to teaching children and their caregivers "creative ways to recycle by making art," The Imagination Factory contains activities for drawing, painting, sculpture, fiber arts, collage, crafts, marbling, printmaking, and holidays; the Trash Matcher , a list of waste materials (aluminum cans, cardboard tubes, egg cartons, rubber bands, etc.) matched to art projects; and links. http://www.kid-at-art.com/ Topics: Environment, Holidays & Observances, Senior Health, Technology Last updated Nov 22, 2002 Internet Stroke Center
"An independent web resource for information about stroke care and research" for patients, their families and caregivers, and health professionals. Information includes illustrations, a glossary of neurological terms, treatment, and symptoms. Also includes links to related organizations, clinical trials, and treatment centers. Some information also available in Spanish. From the Stroke Center at Barnes-Jewish Hospital and Washington University School of Medicine, St. Louis, Missouri. http://www.strokecenter.org/ Topics: Diseases & Conditions, Drugs, Long-term Care, Medical Treatments & Devices, Senior Health Last updated Aug 25, 2005 National Respite Locator Service
"Respite ... is a service [that provides] temporary care to a child or adult with disabilities, or chronic or terminal illnesses, and to persons at risk of abuse and neglect." The service "helps parents, caregivers, and professionals find respite services in their state and local area." Browse by state, or complete an online search form by checking the boxes listing the condition(s) that afflict the person requiring respite care. http://www.respitelocator.org/ Topics: Death & Dying, Diseases & Conditions, Long-term Care, Regions of the World, Senior Health Last updated Dec 18, 2004 National Sexual Violence Resource Center (NSVRC)
This is a center for the collection and distribution of statistics, information, and resources about sexual violence. It is aimed at caregivers, policy makers, and crisis centers. Provides a searchable database of the library catalogs of the center and of the Pennsylvania Coalition Against Rape, publications, a calendar of events, funding resources, profiles of organizations, materials on specific types of sexual violence, and classified ads for jobs in the field. http://www.nsvrc.org/ Topics: Crime, Senior Health, Statistics Last updated Aug 15, 2004 Northwest Regional Council
A regional governmental agency serving seniors, adults with disabilities, and people needing long-term care living in Island, San Juan, Skagit, and Whatcom counties. The site includes articles on issues of aging and elder care, material for caregivers, and links to local, state, and national resources. The Northwest Regional Council serves as Northwest Washington state's Area Agency on Aging. http://www.nwrcwa.org/ Topics: Long-term Care, Senior Health Last updated Jan 2, 2008 Paralysis Resource Center
The mission of this website is "to provide a comprehensive, national source of information for people living with paralysis and their caregivers to promote health, foster involvement in the community, and improve quality of life." It includes information and links on research, active living, rehabilitation, tools and technology, travel, and understanding state, federal, and other assistance programs. From the Christopher " Dana Reeve Foundation. http://www.christopherreeve.org/ Topics: Disabilities, Diseases & Conditions, Senior Health Last updated Mar 11, 2009 Patient Education Resources
Information for cancer patients, family, and caregivers. Topics include caregiver and cancer-related fatigue; coping with chemotherapy; complementary and alternative medicine therapies; hospice; evaluating health information; health insurance and disability benefits; helping children understand cancer; nutrition; and communicating with your doctor. Browsable. From the Comprehensive Cancer Center, University of California, San Francisco. http://cancer.ucsf.edu/crc/education.php Topics: Cancer, Health, Long-term Care, Medical Treatments & Devices, Senior Health Last updated Jul 28, 2007 Project Inform
An information and advocacy organization serving people with AIDS/HIV and their caregivers and healthcare and service providers. This site includes information on current public policy and treatment issues, with a special section on treatment information and advocacy for women. Most of the publications and site contents are also available in Spanish. http://www.ProjectInform.org/ Topics: Infectious Diseases, Senior Health, Women's Health Last updated Mar 2, 2005 PUBYAC
Archives, subscription instructions, and other information about PUBYAC, "an Internet discussion list concerned with the practical aspects of Children and Young Adult Services in Public Libraries, focusing on programming ideas, outreach and literacy programs for children and caregivers, censorship and policy issues, collection development, administrative considerations, puppetry, job openings, professional development and other pertinent services and issues." http://www.pubyac.org/ Topics: Internet, Internet Guides & Search Tools, Librarian Specialties, Librarianship, Libraries & Archives by Type, Senior Health, Social Issues Last updated Mar 1, 2005 Sarcoma Alliance
"Malignant (cancerous) tumors of the connective tissues are called 'sarcomas.'" This group offers guidance, education, and support for patients, caregivers, and families. The site provides links to educational materials, treatment protocols, cancer centers, and support groups. Also includes personal stories from patients and a discussion board. The group is headed by a sarcoma survivor who is a registered nurse. http://www.sarcomaalliance.org Topics: Cancer, Senior Health Last updated Aug 17, 2005 U.S. Census Bureau Facts for Features: Grandparents Day
To celebrate Grandparents Day (the first Sunday after Labor Day), the U.S. Census Bureau offers facts and statistics regarding grandparents, grandchildren, caregivers, multigenerational families, and more. The site includes a brief history of this holiday. http://www.census.gov/Press-Release/www/releases/archives/facts_for_features_special_editions/013971.html Topics: Families, Holidays & Observances, Holidays and Observances Individually, Senior Health, Seniors, Statistics Last updated Aug 26, 2009 When You Are Concerned: Guide for Families, Friends and Caregivers Concerned About the Safety of an Older Driver
"Leaving the wheel can be a watershed event for an aging driver." This handbook covers such topics as monitoring driving habits, resources for help, safe driving tips and equipment, alternative transportation, and how to help the elderly cope with giving up driving. Opens directly into a PDF document. From the New York State Office for the Aging. http://www.aging.ny.gov/Caregiving/OlderDriver/Handbook2007.pdf Topics: Automobiles, Consumer Research & Advocacy, Long-term Care, Senior Health, Seniors, Water Last updated Jun 15, 2008 |
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