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Caregiver Care
 Websites presented in alphabetical order A&A Publishers: Hard Choices for Loving People 
 This site features the full text of the book "Hard Choices for Loving People." Written by a nursing home and hospice chaplain, the book discusses the difficult decisions patients and caregivers face when dealing with terminal illness and the end of life. Covers cardiopulmonary resuscitation (CPR), dialysis, feeding, use of respirators, pain relief, and hospice care, with the intent of helping people make informed choices. Also includes excerpts from a related book. http://www.hardchoices.com/ Topics: Diseases & Conditions, Ethics, Long-term Care, Medical Treatments & Devices, Senior Health Last updated Jun 15, 2007 Alzheimer's Association: Caring for Diverse Populations
"A resource for people with dementia, family and friends, and health and social service professionals." Covers African-American, Chinese, Hispanic/Latino, and Korean communities. The site includes resources in other languages (including Chinese, Korean, and Spanish), links to websites, and information about providing culturally sensitive care. http://www.alz.org/professionals_and_researchers_caring_for_diverse_populations.asp Topics: Long-term Care, Mental Conditions, Senior Health Last updated Mar 1, 2007 Alzheimer's: Planning for the Holidays
Provides caregivers of people with Alzheimer's disease with ideas for coping during the holiday season, a time that "may bring mixed feelings and questions about your loved one's needs, his or her capacity to be involved in holiday festivities, and your expectations for yourself." Topics include planning celebrations, managing expectations, home preparation, and involving loved ones in the holiday plans. From the Mayo Clinic. http://www.mayoclinic.com/invoke.cfm?objectid=CF51EDFA-83FE-4292-A2D90C07588B6F90&locID= Topics: Holidays & Observances, Long-term Care, Mental Conditions, Senior Health Last updated Nov 2, 2005 Cancerandcareers.org: A Resource for Working Women With Cancer
Designed for working women with any type of cancer, their employers, coworkers, and caregivers. Provides coping strategies and tips; brief facts about cancer; and stories from patients, friends, and employers to inspire women to continue to work through treatment. Also available in Spanish. Searchable. http://www.cancerandcareers.org/ Topics: Cancer, Jobs & Work, Long-term Care, Senior Health, Women Last updated Feb 24, 2007 CareGuide
This site offers elder care resources, including medical, legal, and safety information, and guidance for choosing types of care and service providers. Topics include memory and aging, home care, living alternatives (such as hospice and respite care), and wills and estate planning. Searchable. From a care management company. Note: Site also includes information about the company's fee-based services and a directory of providers in the company's network. http://www.eldercare.com/ Topics: Long-term Care, Medical Treatments & Devices, Senior Health, Seniors Last updated Apr 13, 2005 End-of-Life Choices: Feeding Tubes and Ventilators
This fact sheet discusses two common decisions facing families of chronically ill people: using feeding tubes when the person cannot swallow, and ventilators when the person cannot breathe on his or her own. Topics include artificial hydration and nutrition, and pneumonia and ventilators. Provides a link to a fact sheet on "Holding On and Letting Go," and related resources. From the Family Caregiver Alliance, an education and advocacy organization. http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=399 Topics: Diseases & Conditions, Long-term Care, Senior Health Last updated Mar 22, 2005 Family Caregiver Alliance
A source for "caregivers of adults with Alzheimer's disease, stroke, traumatic brain injury, Parkinson's disease, ALS, and related brain disorders." The Resource Center includes care and services, work and eldercare, and related online services. There are factsheets on a variety of diseases, diagnosis, and research, some in Chinese or Spanish. There are also statistics, public policy issues, reading lists, and links to related sites. http://www.caregiver.org/ Topics: Diseases & Conditions, Long-term Care, Mental Conditions, Senior Health Last updated Dec 16, 2002 Family Caregiving 101
This site "is designed to provide caregivers with the basic tools, skills and information they need to protect their own physical and mental health while they provide high quality care for their loved one." Some of the topics covered on the site include care-giving skills, taking care of yourself as a caregiver, "navigating the health care maze," and finding help. From the National Family Caregivers Association (NFCA) and the National Alliance for Caregiving (NAC). http://www.familycaregiving101.org/ Topics: Long-term Care Last updated Oct 9, 2006 Internet Stroke Center
"An independent web resource for information about stroke care and research" for patients, their families and caregivers, and health professionals. Information includes illustrations, a glossary of neurological terms, treatment, and symptoms. Also includes links to related organizations, clinical trials, and treatment centers. Some information also available in Spanish. From the Stroke Center at Barnes-Jewish Hospital and Washington University School of Medicine, St. Louis, Missouri. http://www.strokecenter.org/ Topics: Diseases & Conditions, Drugs, Long-term Care, Medical Treatments & Devices, Senior Health Last updated Aug 25, 2005 National Respite Locator Service
"Respite ... is a service [that provides] temporary care to a child or adult with disabilities, or chronic or terminal illnesses, and to persons at risk of abuse and neglect." The service "helps parents, caregivers, and professionals find respite services in their state and local area." Browse by state, or complete an online search form by checking the boxes listing the condition(s) that afflict the person requiring respite care. http://www.respitelocator.org/ Topics: Death & Dying, Diseases & Conditions, Long-term Care, Regions of the World, Senior Health Last updated Dec 18, 2004 Northwest Regional Council
A regional governmental agency serving seniors, adults with disabilities, and people needing long-term care living in Island, San Juan, Skagit, and Whatcom counties. The site includes articles on issues of aging and elder care, material for caregivers, and links to local, state, and national resources. The Northwest Regional Council serves as Northwest Washington state's Area Agency on Aging. http://www.nwrcwa.org/ Topics: Long-term Care, Senior Health Last updated Jan 2, 2008 When You Are Concerned: Guide for Families, Friends and Caregivers Concerned About the Safety of an Older Driver
"Leaving the wheel can be a watershed event for an aging driver." This handbook covers such topics as monitoring driving habits, resources for help, safe driving tips and equipment, alternative transportation, and how to help the elderly cope with giving up driving. Opens directly into a PDF document. From the New York State Office for the Aging. http://www.aging.ny.gov/Caregiving/OlderDriver/Handbook2007.pdf Topics: Automobiles, Consumer Research & Advocacy, Long-term Care, Senior Health, Seniors, Water Last updated Jun 15, 2008 |
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